What was it?
It was having a face that was different, labelled initially as 'Crouzon Disease', caused by a rare genetic mutation of a chromosome. This change in the chromosome told the cells forming the bones of the skull and face to stop growing too early.
In a 1977 Australian Women's Weekly magazine article a child with this syndrome was described as having a 'grotesque' deformity. At the time I was nine years-old and I thought I was more severe than that child - so what did that make me?
And I am here to tell you, that it is okay to be different. It is okay to be born with a face that has grown in a different way, no matter what other people may think or say.
I wish this book had been around when I was a teenager.
The main reason was because there was no other book in the world with the main character having my syndrome. There is the book Wonder by R.J. Palacio (http://www.randomhouse.com.au/books/rj-palacio/wonder-9780552565974.aspx) but it is a very different story and it isn't written by an author who knows what it's like to be born with a craniofacial syndrome. I truly believe that unless you walk the walk you can't possibly know what it's like to be born with a face that is considered 'abnormal' or 'deformed'.
On my re-working of one of the early manuscripts of Ride High Pineapple, I added another dimension of myself to Issy. Something I knew I had but didn't have a name for - Generalised Anxiety Disorder. I was only diagnosed in 2013, in my 40s, after suffering with it since a child. So as a good writer does and with lots of awareness happening at the moment about mental illness, I gave Issy this as well. In the book all sorts of things stress her out and give her symptoms.
So I would love your support in helping to promote Ride High Pineapple. Let's be partners! Please spread the word about my book and buy a book or download the ebook.
RRP paperback $15 AUD
RP ebook $4.14 AUD
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